INHERITED BLEEDING DISORDERS IN WOMEN

The first book with a holistic approach to all aspects of care for women with inherited bleeding disorders

Ever wondered about heavy menstrual bleeding that did not seem to have any natural or physical causes?

Ever had patients coming in with a family tree full of bleeding disorders?

Inherited bleeding disorders have an adverse effect on the quality of life of afflicted women. Management of these women and their conditions is challenging and close collaboration between professionals in different specialities is needed. International experts and leaders of clinical research including haematologists, obstetrician-gynaecologists, an anaesthetist and those involved in patient advocacy show you how in this practical guide for clinicians.

Inherited Bleeding Disorders in Women covers the gynaecological and obstetric issues for



carriers of haemophilia

women with von Willebrand’s disease

rare bleeding disorders and

inherited platelet disorders.


This book includes recent advances in the field and explores areas for future research. The women’s perspective and the efforts of advocacy groups are also discussed in the final chapter. These features make this book a unique, comprehensive and multi-disciplinary resource.

Pick up your copy today and see the difference it makes to the lives of your patients!

Professor Christine Lee, Honorary Consultant Haematologist, Oxford Haemophilia & Thrombosis Centre

Dr Rezan Kadir, Consultant Obstetrician and Gynaecologist, The Royal Free Hospital, London, UK



Dr Peter Kouides is currently the research director at the Mary M. Gooley Hemophilia Center as well as associate professor of medicine at the University of Rochester School of Medicine. A board certified hematologist and oncologist, Dr. Kouides has been involved in treating and researching bleeding disorders for more than 15 years. He has written numerous articles on bleeding disorders, and is a member of the World Federation of Haemophilia, the National Hemophilia Foundation, the International Society of Thrombosis and Hemostasis, and the Hemophilia Research Society of North America, among others. Dr. Kouides has received numerous awards, including the National Hemophilia Foundation Award of Excellence—Special Award, in recognition of research in women with bleeding disorders, and the Mary M. Gooley Hemophilia Center, Inc. Special Appreciation Award for research and educational initiatives in von Willebrand Disease and menorrhagia.

Contributors.
Preface.
1 Approach to the patient with an inherited bleeding disorder: Peter A Kouides and Clare Philipp.
2 Physiology of menstruation and menorrhagia: Måns Edlund.
3 Hemophilia A and hemophilia B: Christine A Lee.
4 von Willebrand disease: Peter A Kouides.
5 Rare bleeding disorders: Flora Peyvandi.
6 Platelet disorders: Clare Philipp.
7 Gynecology: Rezan A Kadir.
8 Genetic and laboratory diagnosis: Edward Tuddenham.
9 Antenatal diagnosis: Claudia Chi and Rezan A Kadir.
10 Obstetric management: Claudia Chi and Rezan A Kadir.
11 Analgesia and anesthesia for pregnant women with inherited bleeding disorders: Claudia Chi, Adrian England, and Rezan A Kadir.
12 The newborn: H Marijke van den Berg and Rochelle Winikoff.
13 Advocacy for women with bleeding disorders: Rezan A Kadir, Ann-Marie Nazzaro, Rochelle Winikoff, Jane Mathesan and Peter A Kouides.
Appendix i: Bleeding questionnaire.
Appendix ii: Pictorial blood assessment chart.
Index