Health Care for People With Intellectual and Developmental Disabilities Across the Lifespan

This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd , and much expanded edition, of a text that was first published in 1989 (Lea and Fibiger). The second edition was published in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out.

I. Leslie Rubin, MD, is President and Founder of the Innovative Solutions for Disadvantage and Disability (ISDD), Research Associate Professor at the Department of Pediatrics, Morehouse School of Medicine in Atlanta, Georgia, Co-director of the Southeast Pediatric Environmental Health Unit at Emory University, and Medical Director of Developmental Pediatric Specialists, Atlanta, Georgia. He is originally from South Africa, where he trained in pediatrics. He came to the United States to specialize in neonatology and then in developmental pediatrics. He was initially at the hospitals of the Case Western Reserve University in Cleveland Ohio from 1976-1980 and then moved to the Children’s Hospital in Boston and the Harvard Medical School from 1980-1994. In July 1994 he moved to Atlanta, Georgia as Director of Developmental Pediatrics at Emory University and as Medical Director of the Marcus Center. Since 1998, he has been involved with the Southeast Pediatric Environmental Health Specialty Unit at Emory University, where he has integrated his understanding of developmental disabilities into the world of environmental health. In May 2004, he founded the Institute for the Study of Disadvantage and Disability (now Innovative Solutions for Disadvantage and Disability), which is dedicated to improving awareness and understanding of the relationship between social and economic disadvantage and disabilities in children. In September 2004, he left Emory University, and joined the faculty of Morehouse School of Medicine. He is the recipeint of the 2012 Calvin J Sia Award from the American Academy of Pediatrics for work on a Medical Home for Homeless Children and also through the ISDD of the 2013 Martin Luther King Jr Award from Emory University Business School and School of Public Health for the work of ISDD in improving thelives of children who grow up in circumstances of social and economic disadvantage. E-mail: lrubi01@emory.edu

Joav Merrick, MD, MMedSci, DMSc, is professor of pediatrics, child health and human development, Division of Pediatrics, Hadassah Hebrew University Medical Center, Mt Scopus Campus, Jerusalem, Israel and Kentucky Children’s Hospital, University of Kentucky, Lexington, Kentucky United States and professor of public health at the Center for Healthy Development, School of Public Health, Georgia State University, Atlanta, United States, the medical director of the Health Services, Division for Intellectual and Developmental Disabilities, Ministry of Social Affairs and Social Services, Jerusalem, the founder and director of the National Institute of Child Health and Human Development in Israel. Numerous publications in the field of pediatrics, child health and human development, rehabilitation, intellectual disability, disability, health, welfare, abuse, advocacy, quality of life and prevention. Received the Peter Sabroe Child Award for outstanding work on behalf of Danish Children in 1985 and the International LEGO-Prize (“The Children’s Nobel Prize”) for an extraordinary contribution towards improvement in child welfare and well-being in 1987. E-mail: jmerrick@zahav.net.il

Donald E. Greydanus, MD, Dr. HC (ATHENS), FAAP, FSAM (Emeritus), FIAP (HON)is Professor and Founding Chair of the Department of Pediatric and Adolescent Medicine, as well as Pediatrics Program Director at the Western Michigan University Homer Stryker MD School of Medicine (WMED), Kalamazoo, Michigan, USA. He is also Professor of Pediatrics and Human Development at Michigan State University College of Human Medicine (East Lansing, Michigan, USA) as well as Clinical Professor of Pediatrics at MSU College of Osteopathic Medicine in East Lansing, Michigan, USA. Received the 1995 American Academy of Pediatrics’ Adele D. Hofmann Award for “Distinquished Contributions in Adolescent Health”, the 2000 Mayo Clinic Pediatrics Honored Alumnus Award for “National Contributions to the field of Pediatrics,” and