Raising Rhia: A Mother's Fight for a Joyful Life

The powerful story of a mother fighting for her daughter in a world unprepared for her needs.

Born with multiple disabilities--including vision impairment, cerebellar ataxia, hearing loss, and mitochondrial disease--Rhia's life unfolds in a maze of medical uncertainty and bureaucratic roadblocks. In this memoir, Terena Scott lays bare the relentless battles, raw grief, and fierce love that define her journey, refusing to let the system--or fate--dictate her daughter's future.

Told in six poignant sections--Dreams, Fear, Hope, Loss, Grief, and Love--Raising Rhia captures the complexities of parenting a child with disabilities, balancing everyday joys with the weight of anticipatory grief. At its heart, it is a story of resilience, connection, and seeing a child for who she is, rather than what she has. Both a deeply personal narrative and a reflection on the broader realities of raising a child with disabilities in the United States, Scott's candid and compassionate account offers insight, solidarity, and hope for parents and caregivers facing similar challenges--and anyone seeking joy inside the burden of grief.