Parkinson Disease - A Health Policy Perspective

Part of the successful Institute of Health Economics (IHE) book series, this handbook and ready reference adopts a unique approach in combining policy recommendations with specific treatment options for Parkinson patients.
The first part of the book deals with the clinical medical, social and economical aspects of Parkinson Disease. These ten chapters include the latest diagnosis and treatment options for patients, the economical consequences, social and ethical implications and end-of life issues. The second part of the book essentially covers a large-scale case study on Parkinson in Alberta, Canada, since most of the issues discussed are relevant in all developed countries.
With its strong focus on correct diagnosis and early intervention, this is an invaluable guide for clinicians and policymakers dealing with this devastating disease.

Wayne Martin, MD, FRCPC, Movement Disorders Clinic, University of Alberta/Glenrose Rehabilitation Hospital, Edmonton, Alberta
Dr. Martin received his undergraduate and medical education from the University of Alberta. After completing a neurology residency at the University of British Columbia in Vancouver, he obtained postgraduate research training at Washington University in St. Louis. He then returned to Vancouver to join the University of British Columbia neurology faculty as part of the movement disorders group. In 1990, he returned to the University of Alberta as a Professor in the Division of Neurology and Director of the Movement Disorders Clinic. He remains active in research with particular interests in neuroimaging and in clinical trials of new treatments in movement disorders.
Oksana Suchowersky, MD FRCPC, Movement Disorders Program, Hotchkiss Brain Institute, Calgary Alberta
Katharina Kovacs Burns, MSc, MHSA, PhD, Health Sciences Council, University of Alberta, Edmonton, Alberta
Egon Jonsson, PhD, Professor, University of Alberta, School of Public Health, Edmonton, Alberta; University of Calgary, Community Health Sciences, Calgary, Alberta; Executive Director & CEO, Institute of Health Economics, Edmonton, Alberta

Preface.
Summary and Policy Considerations.
List of Contributors.
Part I Parkinson Disease – Diagnosis and Treatment.
1 Parkinson Disease (Ray Williams).
1.1 Patient Burden.
1.2 Characteristics of Parkinson Disease.
1.3 Diagnosis of Parkinson Disease.
1.4 Treatment for Parkinson Disease.
References.
2 Clinical Features of Parkinson Disease (Wayne Martin).
2.1 Introduction.
2.2 Cardinal Features.
2.3 Differential Diagnosis.
2.4 Non-Dopaminergic Features of PD.
2.5 Natural History.
2.6 Conclusions.
3 Current Approaches to the Management of Parkinson Disease (Wayne Martin and Marguerite Wieler).
3.1 Introduction.
3.2 Pharmacologic Treatment.
3.3 Nursing.
3.4 Rehabilitation.
3.5 Nutrition.
3.6 Psychosocial Issues.
3.7 Conclusions.
4 Treatment of Non-Motor Symptoms of Parkinson Disease (Ranjit Ranawaya and Oksana Suchowersky).
4.1 Sleep Disturbances.
4.2 Autonomic Dysfunction.
4.3 Neuropsychiatric Problems.
4.4 Sensory Symptoms and Pain.
4.5 Other Problems.
4.6 Non-Motor Fluctuations.
4.7 Conclusions.
5 Palliative Care and End-of-Life Issues with Parkinson Disease (Lorelei Derwent, Karen Hunka, and Oksana Suchowersky).
5.1 Challenges in Advanced-Stage PD.
5.2 The Most Common Causes of Death in PD.
5.3 Specific Problems in the Advanced-PD Patient.
5.4 Caregiver Burden.
5.5 Summary.
6 Natural Health Products in Parkinson Disease (Cheryl Sadowski and Shirley Heschuk).
6.1 Introduction.
6.2 Methods.
6.3 Conclusions.
7 Can the Art of Medicine use Arts as Medicine? A Personal Perspective (Joyce Pinckney).
7.1 Music Therapy – Let's Listen, Let's Play.
7.2 Gait – Let's Make Tracks.
7.3 Voice – Let's Make a Joyful Noise.
7.4 Art – Let's Create a Masterpiece.
7.5 Dance – Let's Groove.
7.6 Conclusion.
Further Reading.
8 The Costs of Parkinson Disease (Arto Ohinmaa).
8.1 Introduction.
8.2 Methods.
8.3 Discussion.
8.4 Summary and Conclusion.
9 A Literature Summary on Parkinson Disease (Paula Corabian and Liz Dennett).
9.1 Objective.
9.2 Methodology.
9.3 Literature Search Findings.
9.4 Literature Summary.
9.5 Early Features of PD.
9.6 Available Clinical Practice Guidelines.
10 Highlights of Current Research in Parkinson Disease (Wayne Martin and Bin Hu).
10.1 Overview of Research Policy.
10.2 Clinical Research.
Part II The Case of Alberta, Canada.
11 The Incidence and Prevalence of Parkinson Disease in Alberta (Lawrence W. Svenson and Nikolaos W. Yiannakoulias).
11.1 Introduction.
11.2 Methods.
11.3 Results.
11.4 Discussion.
12 Knowledge, Service Access, and the Needs of Individuals Living with Parkinson Disease: The Alberta Case (Katharina Kovacs Burns).
12.1 Introduction.
12.2 The Alberta Case.
12.3 Background and Context for Study.
12.4 Parkinson Disease: Its Impact and Costs.
12.5 Study Design and Methodology.
12.6 Concluding Comments and Recommendations.
13 Caregivers of Persons with Parkinson Disease: Experiences and Perspectives (Katharina Kovacs Burns).
13.1 Appreciating the Relevance of the Caregivers' Experiences.
13.2 Caregiver Burden: A Review of the Literature.
13.3 Results of an Alberta Study Involving Caregivers.
13.4 Analysis, Conclusions and Recommendations.
14 Health-Related Quality of Life in Parkinson Disease: An Introduction to Concepts and Measures (Marguerite Wieler and Allyson Jones).
14.1 What Are the Symptomatic Features?
14.2 Health-Related Quality of Life.
14.3 Generic Measures.
14.4 Disease-Specifi c Measures.
14.5 Conclusions 285
Appendix: Parkinson-Focused Quality of Life Questionnaires.
Parkinson's Impact Scale.
15 Measuring Health-Related Quality of Life in PD: How Does It Compare to the Canadian General Population? (Allyson Jones and Sheri L. Pohar).
15.1 Introduction.
15.2 Research Design and Methods.
15.3 Discussion.
15.4 Conclusion.
16 Policy Considerations for Alberta (Katharina Kovacs Burns, Egon Jonsson, Oksana Suchowersky, Wayne Martin, Bin Hu, and John Petryshen).
16.1 Coordinate Neurological Services – Establish Specialized Centers Within a New Framework.
16.2 Establish a Committee to Review the Management of People with Neurological Diseases.
Appendices.
Appendix A: Parkinson Disease FAQ Sheet.
What is Parkinson Disease?
Who Does Parkinson Disease Affect?
What are the Symptoms of Parkinson Disease?
What Are the Non-Motor Symptoms of Parkinson Disease?
How is Parkinson Disease Diagnosed?
Who Treats People with Parkinson Disease?
How is Parkinson Disease Treated?
What Other Support Services Are Available?
Appendix B: Glossary of Terms.
Index.