White Matter ― A Memoir of Family and Medicine

White Matter: A Memoir of Family and Medicine is the story of a Bostonian close-knit Jewish working-class family of five sisters and one brother and the impact they and their next generation endured due to the popularization of lobotomy during the 20th century. When Janet Sternburg’s grandfather abandoned his family, and her uncle, Bennie, became increasing mentally ill, Sternburg’s mother and aunts had to bind together and make crucial decisions for the family’s survival. Two of the toughest familial decisions they made were to have Bennie undergo a lobotomy to treat his schizophrenia and later to have youngest sister, Francie, undergo the same procedure to treat severe depression. Both heartrending decisions were largely a result of misinformation disseminated that popularized and legitimized lobotomy.

Woven into Sternburg’s story are notable figures that influenced the family as well as the entire medical field. In 1949, Egas Moniz was awarded the Nobel Prize in Medicine for developing the lobotomy, and in the three years that followed his acceptance of the award, more Americans underwent the surgery than during the previous 14 years. By the early 1950s, Walter Freeman developed an alternate technique for lobotomy, which he proselytized during his travels throughout the country in a van he dubbed the Lobotomobile.”

The phrase prefrontal lobotomy” was common currency growing up in Janet Sternburg’s family and in White Matter she details this scientific discovery that disconnects the brain’s white matter, leaving a person without feelings, and its undeserved legitimization and impact on her family. She writes as a daughter consumed with questions about her mother and auntsall well meaning women who decided their siblings’ mental health issues would be best treated with lobotomies. By the late 1970s, the surgical practice was almost completely out of favor, but its effects left patients and their families with complicated legacies as well as a stain on American medical history. Every generation has to make its own medical choices based on knowledge that will inevitably come to seem inadequate in the future. How do we live with our choices when we see their consequences?

Janet Sternburg is a writer of memoir, essays, poetry and plays, as well as a fine-art photographer. She lives and works in Los Angeles and San Miguel de Allende, Mexico. Her books include the memoirPhantom Limb (University of Nebraska Press, American Lives series 2002, pb 2003) andOptic Nerve: Photopoems (Red Hen Press, 2005). She has commissioned and edited the classic two volumes ofThe Writer on Her Work described as groundbreaking . . a landmark” by Poets and Writers (W.W. Norton, 1980; Volume 2, 1991, Twentieth anniversary edition, 2000). Her essays have appeared in many journals and anthologies ranging fromThe Prairie Schooner Anthology of Contemporary Jewish Literature to two cover stories forO at Home: Oprah’s Private Library,” and Oprah’s Secret Garden.” (2008)

Currently she is a regular contributor to the cultural journal Times Quotidian, writing on the interplay between photography and writing, and writing a third memoir,Gypsy Curiosa, the name of a rose whose colors intensify as it ages.