Genetic Transparency? ― Ethical and Social Implications of Next Generation Human Genomics and Genetic Medicine

Through seven essays, genomics, humanities, and social sciences specialists from Europe and Canada consider who has or should have access to personal genomic and genetic information. They explore the metaphor of transparency in general and genetics contexts; the process of DNA sequencing in genomics; anthropological issues relating to who the subject of genetic responsibility is; personal genomics and its governance; the ethics of genetic disclosure; the regulation of newborn screening programs and research in whole-genome sequencing; and ethical issues in the communication of genetic transparency. Earlier versions of the essays were first presented at a workshop held at the U. of Lubeck, Germany, in March 2013. Annotation c2016 Ringgold, Inc., Portland, OR (protoview.com)

Malte Dreyer is associated at the Institute of Philosophy at the University of Marburg. 2012-2013 he was Scientific Officer of the project “Genetic Transparency” at the Institute for History of Medicine and Science Studies at the Universitat of Lubeck. Current research interests include especially philosophy of science. Jeanette Erdmann, Dr. rer. nat. (1996), University of Cologne, Germany, is director of the newly founded Institute for Integrative and Experimental Genomics at the University of Lubeck (since 2013). She has published more than 200 original papers. Christoph Rehmann-Sutter, Dr. phil. (1995), Technical University of Darmstadt, is Professor of Theory and Ethics in the Biosciences at the University of Lubeck, Germany. He has published monographs and many articles in philosophy, mainly ethics of of genetics, medicine and the life sciences, includingZwischen den Molekulen. Beitrage zur Philosophie der Genetik (Francke, 2005).