A Friendly Guide to Branchio-Oto-Renal Syndrome for Kids
Written by Fiona Cain - Storyteller: Tillie the Dog
Meet Tillie - a curious little dog with a big heart and a love of learning. In this bright, reassuring picture book, Tillie helps young readers understand a rare condition called Branchio-Oto-Renal Syndrome (BORS) in a way that is gentle, clear, and empowering.
Using simple language, playful illustrations, and a warm, supportive tone, Tillie Explains: What Is BORS? introduces how BORS can affect the neck, ears, and kidneys - and why every child with BORS is wonderfully unique. Whether a child has BORS, knows someone who does, or is learning about differences for the first time, this story encourages understanding, confidence, and inclusion.
Written for children aged 3 to 10, this book was created by Fiona Cain, a parent and advocate with lived experience supporting a child with BORS. It is designed to help families, educators, classmates, and healthcare professionals explain a complex condition in a way children can truly understand.
Inside this book, children will learn:
Tillie Explains: What Is BORS? is an ideal starting point for conversations about rare conditions, medical differences, empathy, and celebrating what makes each child special.
For additional educational resources and family support, visit:
www.branchiootorenalsyndrome.com
Copyright (c) 2025 Fiona Cain
Published by the Branchio-Oto-Renal Syndrome Education Centre (also known as BORS Education Centre).
All rights reserved. This work is registered with the U.S. Copyright Office and is protected internationally under the Berne Convention. No part of this publication may be reproduced, stored, transmitted, or distributed in any form or by any means without prior written permission. Unauthorised use is strictly prohibited.
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