Memory And Parenting Book: A Child With Sturge-Weber Syndrome And The Story Behind: Prayer For Father And Son Relationship
商品簡介
A son wants to know that the way he is living his life - his interests, schoolwork, hobbies, and passions - is pleasing to his father. And, as a good dad, it is critical for a father to guide his son into the right actions and help him live a life centered on serving others.
Sturge-Weber syndrome (SWS) is a neurological disorder marked by a distinctive port-wine stain on the forehead, scalp, or around the eye. This stain is a birthmark caused by an overabundance of capillaries near the surface of the skin. Blood vessels on the same side of the brain as the stain may also be affected. It causes serious problems in kids.
This book is a combination memoir and parenting book that defies traditional genre stereotypes. It is the life story of a little boy with Sturge-Weber Syndrome told from the perspective of the father. As a book that helps other parents, caregivers, and health care professionals understand more about this particular orphan disease, it will strike an unusual chord as it is written from an analytical, left-brain perspective that most authors do not explore in their quest for answers. Also, as a memoir, it investigates the cycle of grief-analysis-acceptance delving into the concept of uncertainty and how much we as humans can and cannot do to control the big and little things in our children's lives.
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