商品簡介
When four-year-old Elisa Linton was diagnosed with Sanfilippo syndrome-a rare, terminal childhood disease-her father Randall's world shifted forever.
In this deeply personal account, Randall shares how his little girl sparked a global community of doctors, researchers, families, and unlikely allies-from grandmothers to celebrities-to advance rare disease research and bring hope to families facing the unthinkable.
As his family's fight against an impossible diagnosis becomes a movement, it reveals profound truths about love, faith, and the extraordinary strength that emerges when ordinary people refuse to surrender to despair.
Conveyed with raw honesty and unexpected moments of joy and humour, this is a testament to tragedy as a catalyst for healing, hope, and lasting change that reaches far beyond one family's journey.
All proceeds from the sale of this book go to The Sanfilippo Children's Research Foundation. Visit ALifeforElisa.org.
